Gary McClain, PhD, is a therapist, patient advocate, and writer who specializes in helping clients—as well as their family members and professional caregivers—deal with the emotional impact of chronic and life-threatening illnesses.
Will made an appointment to talk with his physician about how he had been feeling over the last couple of weeks. As usual, his doctor started the conversation with a question: “What brings you in today?”
“I’m just not feeling it lately,” Will answered.
“Not feeling what?” his doctor asked.
“Not feeling all that well.”
When his doctor when on to ask will to describe any symptoms he was experiencing, Will wasn’t sure how to answer. He hadn’t really thought about exactly how he was feeling. He just knew he wasn’t feeling like he normally feels.
Will’s doctor went through a list of possible symptoms with him, based on the medications he is taking. Most of them didn’t seem at all close to how he was feeling. Although he couldn’t describe to his doctor what his symptoms were, the conversation provided him with some ideas about what to watch out for in the days ahead. His doctor had also suggested a couple of tests that Will may need to undergo.
Will still left his doctor’s office feeling frustrated about how their conversation had gone. He felt that by not being able to come up with the right words to describe how he was feeling, he hadn’t been able to help his doctor to help him. As a result, the appointment hadn’t been a good use of his time or the doctor’s time. And he still wasn’t feeling like himself.
“What do I need to do?” he wondered. “Walk around with some kind of symptom checklist?”
Have you ever felt like Will? Kind of knowing how you feel but being unable to come up with the right words?
Describing your symptoms doesn’t require that you have a grasp of medical terminology. There are different ways to describe symptoms. You can use a direct approach or an indirect approach.
Here are some ideas for you:
Focus on how your life is being affected. Think of your symptoms in terms of what your life was like before they appeared. What you were able to do or how easily you were able to do it. And then, considering what life was like when you felt better, identify what has changed. Are you having difficulty climbing the stairs? Having trouble completing the work at your job? Getting annoyed easily with other people? Providing examples related to day-to-day functioning can help to give your doctor a clearer picture.
Use a metaphor. Visualize your symptoms in terms of how they affect the way you function day to day and then describe them in a more symbolic way through a metaphor. Examples might include “walking up a hill carrying a 20 pound weight in each hand” or “trying to go to sleep with a marching band in my head.” Some of us are better with metaphors than others, but if you come up with one, give it a try on your doctor. It may not be exact enough for your doctor, but it’s a way to give him/her a sense of the impact of your symptoms.
Make a list of words. Just come up with a list of words that describe your symptoms. Use descriptive words, also referred to as adjectives, like achy, cloudy, or tingling. It might help to do some brainstorming with yourself on a sheet of paper. Create list off the top of your head, without evaluating the words as you go along. Don’t worry about being exact. Then go through the list and circle any words that you think might come closest to how your symptom feels to you.
Include the specifics. When, where, how. While physicians need to know what your symptoms are, they also need related details. These details include time of day, what you were doing at the time, any and all medications you were taking, what you might have done to help yourself, and any other details related to your symptoms that come to mind. The more clearly you can create a picture of what your life is like with these symptoms, the better able your doctor will be to make a determination.
Identify any concerns that the symptoms raise for you. Worried about whether your medication is working? That your condition may be progressing? That your self-care plan may need adjusting? Let your doctor know about such concerns, so that he/she can either provide reassurance or take additional action.
Bring brief notes. As you know, physicians have less and less time to spend with their patients. So if you can come prepared with a description of your symptoms – words, examples, metaphors – you will get to the point that much quicker and, in turn, your doctor will have more time to discuss solutions. Lead off the discussion by describing your symptoms as well as any related details you think the doctor needs to know. Have your notes ready to help you respond to any additional questions he/she may have.
Keep a journal. You might find it easiest to keep track of symptoms if you keep a healthcare journal. You don’t have to write in it every day, and you can maintain it in any format that works for you. Lists, paragraphs, bullet points. Write down anything related to your symptoms. Review it before your next appointment or other times when you are reaching out to your doctor.
You and your symptoms. Do your part to come prepared to your doctor’s appointment with a clear and concise description of your symptoms, from the perspective of how you are feeling and how your daily life is being impacted. Clearer communication means better teamwork!