Spontaneous Coronary Artery Dissection - (SCAD)

SCADthy
By SCADthy Latest Reply 2014-07-16 17:02:43 -0500
Started 2014-05-15 22:00:49 -0500

Hi, I just joined this group. I had a Heart Attack (MI) caused from SCAD 20 years ago. I was told it was very rare, and lucky to have survived. I was 33 years old, healthy. Long story short, 2 years ago I found information and learned of a research about SCAD. I am on a mission to spread awareness. We are learning that SCAD is not as rare as previously believed, just not diagnosed. Most SCAD Patients are young, healthy women, I called it Post-partum CAD for 18 years. Some women were going through Menopause, using Hormone Replacement Therapy, extreme exercise, some are men. There is so much new information about SCAD.

Has anyone here been told they have SCAD? I searched for a long time before finding this information, I don't want anyone to feel alone, as I did for 18 years. If you have been diagnosed with SCAD, you may want to look at the Mayo Clinic SCAD Research link. It is very interesting and thanks to Social Media, more and more SCAD Patients are finding this information. More information can also be found at www.scadresearch.org. Bless Your Heart! Love, Cathy Seitz


2 replies

Hyrum Anderton
Hyrum Anderton 2014-07-16 17:02:43 -0500 Report

Cathy,

Welcome to Heart Connect! I hope you are doing well. I just wanted to introduce myself. I am the community manager here. If you have any questions or I can assist you with anything to help you have a better experience let me know.

SCADthy
SCADthy 2014-05-15 22:56:32 -0500 Report

I just want to add one more finding from the research. Many of the SCAD patients who participated in the research were also diagnosed with Fibromuscular Dysplasia (FMD) another "rare" condition that causes arteries, other than in the heart, to tear. I forgot to explain SCAD, the arteries are made of 3 layers of skin, which separate and collapse, causing blockage which can cause a MI. Not all SCAD Survivors have a MI, not all have FMD, but there is a link that connects the two in some cases. I have not been tested for FMD yet. Information about FMD can also be found on the Mayo Clinic website. Another source for information on SCAD is www.scadalliance.org. Interesting research that everyone, at least all medical personnel, should be aware of. I'm glad I found it! Help me spread awareness and hopefully find some SCAD patients who are not yet aware of this information and let them know that they are not alone. Thanks again!