Just an update on my four year old daugther who has had three open heart surgeries. The last one was perform back at the end of May. The last surgery was to help her live longer and to improve her oxygen levels. Well at the beginning the oxygen level was up to 93%, well we are soo disappoined because her oxygen levels keep dropping right now she is on 82% and she is turning blue again, and getting outwinded again when she is playing. Cardiologist said that the function of her heart is good, but her oxygen levels are on the lower side but not dangerously low and because of the fenestration that its on her heart she will have the tendency to turn blue.
I told her cardiologist that they told us before the surgery that she would not turn blue anymore and that her oxygen levels were going to be better and she is no better thatn before the last surgery. The cardiologist said that the only explanation that they can give us now is that since she has being so sick with bronchitis, cold, cough since September that that is what is causing her to turn more blue and to have a low oxygen levels, but then I told him back in August when you ckecked her her oxygen level was at 83% already and the day we took her in to see the Cardiologist it was at 81%. But that was all the explanation that he could give me. I guess they don't want a make a big deal out of this jet. But we would see what happens in January.
Cardiologist wants to see her again in January, he just saw her two weeks ago. He said that he would like to see her again and see how her oxygen levels are by then.
It is very frustrating. I want to do more for her but there is nothing else I can do. Just wait and see what the Doctors will do when they see its necessary.
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