Been trying to find an answer since 1995

cath1955
By cath1955 Latest Reply 2012-07-27 22:15:45 -0500
Started 2012-07-24 11:09:56 -0500

I had a stroke in 7/1995.. second in 1/1996. After ab angiogram was done,The doctors discovered that my carotid arteries are in the back of my neck, instead of the front. I was informed that it was a birthdefect.

Plus they would not promise that I would recover ( Being a single parent, I have no choice but to do so,it is 2012 and I am still here) I have partial usage of my left hand and weakness in my left leg

How common is this birthdefect? No one seems to have an answer to this question


10 replies

HeartHawk
HeartHawk 2012-07-24 22:49:31 -0500 Report

cath,

A far more common congenital condition is a missing or hypoplastic carotid which occurs in less than 0.01% of the population. I coul dfind no registry of this defect so I would suggest it is far less than 0.01%!

Further research suggests that if not for the angiogram you would never had known of it as it si typically asymptomatic. But, on the bright side, it is useful to know this should you ever need surgery or other invasive procedure such as catheterization of the head or neck.

HH

cath1955
cath1955 2012-07-25 10:26:27 -0500 Report

any risk of this being genetic?

HeartHawk
HeartHawk 2012-07-25 23:52:52 -0500 Report

cath:

Hmmm, an interesting question. It is noteworthy to understand hermangiomas are non-normal, aterial-related and connected structures that most commonly occur in caucasian, female, twins with about 80% occurring in the head and neck area. It could be that some common genetic alteration manifested itself in two different ways.

BTW, Are you maternal or fraternal twins?

HH

cath1955
cath1955 2012-07-26 08:17:57 -0500 Report

Mirror image. Btw her hemangioma was in my twin's bottom, they treated it in the 50's with radiation

HeartHawk
HeartHawk 2012-07-26 23:22:28 -0500 Report

cath:

OK, by "mirror" do you mean "maternal" as in a single egg that split as opposed to "fraternal" as in two separate eggs both simultaeously fertilized?

HH

HeartHawk
HeartHawk 2012-07-27 22:15:45 -0500 Report

cath,

Yes, fraternal twins. That would make it unlikely that you share a common condition like transposed carotids as you each came from a separate sperm and egg.

HH