Not sure what to think anymore. I had an icd put in 12/27/2011 then the leads came loose and I had to have it redone on 2/3/2012. With that surgery I got three clots in my upper left arm. They put me on coumadan for three mos then was off it for a month then they did a doppler early this month to see if they were still there. Then I went last Friday to find the results. I was upset because the office called to reschedule my appt and when I had the doppler they seemed to be having issues but they could not tell me anything the doc has to give results.
So I waited till this past Friday. My appt was scheduled at 4pm. I did not get out of there till 6:15pm. I was upset. When the hematologist came in he asked what I wanted him to do for me? He said he did not know what to do to put my mind at ease. I said well you are the doctor…he said very nonchalantly that you don't worry about provoked clots mine are provoked because of my surgery putting the icd in. He said you worry about non provoked ones because you don't know where they came from. He said that he did all the bloodwork and I am not prone to blood clots. He said that one has dissolved, that one is dissolving but when I asked about the size he said they don't measure size, and the third has not done anything. He said we could do coumadan some more but he preferred just to do the baby asprin. We willl do another doppler in three mos. He said that it takes time for them to dissolve and everyone is different. I asked about them moving and he said that the ones in the leg move quicker than the ones in the upper extremities. He made me feel stupid for worrying. I told him I am not the authority on blood clots. I only know they can kill you. When he said he would recheck me in three mos I wanted to ask him why bother the way he was so nonchalant. My ejection rate was at 15-20 when I got my icd and now it is at 30-35 last month. So it is improving. My only complaint is that I am still tired and I can be really forgetful. My cardiologist encourages me to keep busy. She says you don't use it you loose it. My osteopath says I can lift 2-3 lbs my cardiologist says 25 lbs. I wish they would come to an agreement. My osteopath says and what if he would and then I could not handle things and then I would lose my disabiity and could not get it back. I just turned 53 last week. I don't like being so idle. You can only clean your house, read, and knit or crochet so much. When osteoopath gets back from his vacation I want to go sit and talk to him. Idk what to think.