A month tomorrow since my second surgery...

openhearts1110
By openhearts1110 Latest Reply 2012-02-18 22:38:28 -0600
Started 2012-01-01 22:14:40 -0600

After having heart surgery has anyone else had other issues with there heart that they didnt have before there surgery. I had my aortic valve repaired last year in novembet. December 2nd I had my valve replaced. My valve is working near perfectly. My other valves however are now leaking and I have cardiomyopathy. Im probally just freaking myself out but after two surgeries and almost dying both times im kinda just scared. I just want to start school and not have to worry about anything else. I hope everyone had a pleasent new years and is doing well.


13 replies

bikerbay
bikerbay 2012-02-18 14:34:23 -0600 Report

Well I am 27 I have had for open heart Surgery's every one more scary then the one before. My mom has been there through all my surgery's she's been great. In May of last year I had to have a catheter surgery I died twice on the operating table, had to have a blood transfusion. And then I woke up with a tube down my throat.

mbueno
mbueno 2012-01-04 12:02:35 -0600 Report

You are such a brave young girl. It gives me hope seeing some one like you going trhough soo much and still going strong. I have a 3 year old with hypoplastic left ventricle syndrome and she has being very sick since November. But like you she is a figther. Wish you the best for 2012!!!! Good luck on your Dr.'s appoinments.

shoulders
shoulders 2012-01-03 19:08:43 -0600 Report

Hello openhearts1110, So sorry that your so worried about this other surgery. I too had a procedure done this past December. Was told that I had 65-75% blockage in the left valve to my heart. When I woke up I was informed that they (Doctors) were able to thin out the blockage with the balloon. I too was so affraid that I was in serious trouble. I was able to come home within 24 hours and learn to make new changes in my life. I now beleave that it is to our best interest to have these proceedures done as soon as we are able. May God shine his love, healing powers on you. I will keep you in my prayers. Shoulder Cynthia

HeartHawk
HeartHawk 2012-01-03 21:24:30 -0600 Report

shoulders,

Thanks for chiming in here. Is SO valuable to have your real-world experience to add to that of openhearts. Plus - it is nice to know there are others out there liek you and you are not alone!

HH

shoulders
shoulders 2012-01-04 14:34:37 -0600 Report

Hi HH, Nice to hear from you also. Yes its been a long month and some recovery time still going on. Still I get a little emotional at times, but still trying to get strong again. Have to make several changes in my life, makes one think about whats really important in their life. Adding blood thinners to my meds. And changes to my diet also. One thing that really keeps me upset is not having the desire and the strength to do all that I was doing before the procedure. Now I fill so old and tired. The Doctor says its not uncomman to be depressed. Hope that all went well for you and your family for the holidays. How did your grandson react to Christmas? Did he see Santa Clause? Take care of yourself, and keep setting that bar high for all of us new patients! Shoulders

HeartHawk
HeartHawk 2012-01-10 23:08:11 -0600 Report

shoulders,

Hey, Happy New Year, I missed this post! You are right on the money regarding depression. Seems like I fight it every day. I have tried taking meds for it (SSRI's like Prozac and the rest) but I just didn't feel like me. The bottom line is that I'd rather take the ups and downs and feel alive than live with the steady and almost emotionless state the drugs create.

Fortunately (although not everyone agrees), I am a little bipolar so there are a few highs as well, lol!

HH

openhearts1110
openhearts1110 2012-01-03 15:29:10 -0600 Report

Thank you guys. I have to go to the hospital Friday to see the doctor. May be having surgery to fix my scar. Its not healing nearly at all. Alls okay though. I hope everyone enjoys the new year. Stay safe. And I hope you all have a healthy year.

HeartHawk
HeartHawk 2012-01-12 23:41:35 -0600 Report

open,

I think a lot of people would be interested in understanding how surgical scars are handled. Let us know how you and your docs deal with it.

HH

Te Ja
Te Ja 2012-01-03 15:25:39 -0600 Report

I have not been through any such situation, thou want to wish you the best and have a wonderful 2012.

berrykins0
berrykins0 2012-01-02 07:42:14 -0600 Report

sorry to see you having issues with your valve. i can see why you would be scared after almost dying 2 times. i would be scared too. its good to vent what your feeling cause other people that feel this way can support you and you can support them and makes those scary feelings easier to deal with.

HeartHawk
HeartHawk 2012-01-01 23:58:13 -0600 Report

openhearts,

This is a great question and encourage others to chime in with their experience. I have not had such surgeries so I have less to offer in this area. Yeah, it IS scary but fortunately such heart surgeries are what current heart medicine is really good at.

Hang in there and work with your docs and let's see what the rest of the community can offer.

HH