Cardiomyopthy and Congestive Heart Failure

MsKim41
By MsKim41 Latest Reply 2012-08-14 19:03:05 -0500
Started 2011-11-10 11:49:01 -0600

Hi, I just found out in February that I have CHF and after spending the night in the hospital they have now added Cardiomyopathy. My Ejection Fraction was 28 in Feb and is now at 31 since adding a couple of more pills to my diet…lol. At any rate i'm starting to think that I'm crazy because everytime I have issues (palpitations, rapid heart rate, sharp pain radiating to left arm, cold sweats, nausea, and shortness of breath) I go to the hospital and all the test come back "normal" like I made up the what happened. This frustrates me beyond major and I'm starting to get to the point where I don't want to go to the hospital the next time it happens. This is all new to me and it is a tad bit depressing; some days I am so tired that I can't get out of bed and other days I can get out of bed but have no energy to do much else, my doctor says it's all a part of it and are trying to decide if the he is going to do a heart cath and ICD/pacemaker. I vote for which ever one will make me feel a little more human. I really don't know how to deal with these diseases (along with high BP and Sleep Apnea and an irregular, irregular heart beat). I'm glad that I found out about this group, I've been dealing with this by myself with people who don't understand how this makes me feel and the slight case of fear that comes along with it. It's nice to know that there are people that can help me deal with this better?


8 replies

Anonymous
Anonymous 2012-08-14 19:03:05 -0500 Report

Hi, I will have to join you on this one. I am new too. In June I wa hospitalized to have A cardic cath The dr found no blockages. But he did find out that I have a very weak heart and that my body only gets about 30 to 40% of my return blood. MY heart is enlarged and he said I have Congestive Heart Failure. He put me on meds and sent me on my way like I had a cold or something. He keeps acting like it's no big deal. Mean while I am lost and scared to death. He even said I could keep on working. Man I am scared to death. I do not know that much about this stuff but, it sounds very serious to me.Or am I the only one that thinks so. Sometimes the chest pains in my heart are really bad. i do not know what to do for it. Does anyone else know what I should be doing .

LennyDenny
LennyDenny 2011-11-28 09:56:46 -0600 Report

I have been through the same thing and I am still going through it. I know how I feel but the drs. keep telling me that the blood work and other tests look close to normal, but I know how I feel. I have the palpitations and rapid heart rates and shortness of breath. I was at the cardio. dr. last Friday. I am going for a heart cath tomorrow. I have had 6 heart caths done in the past 8 years. This time he said they will do a right heart cath to check the pressures. All the others have been on the left side checking the stents and blockage I have. I gave up going to the emergency room, but kept pushing the drs. to let them know exactly how I feel. After a few months I might soon get some answers. Keep pushing because only you know how you feel and that's what matters. Your right, this is a great place to get help and support.
Denny

Kimmie2013
Kimmie2013 2011-11-11 20:28:48 -0600 Report

I have been there and done that. And the fear is so difficult to explain. This is why i run off to the emergency room so often, which now i try not to , only because of the humiliation and embarrassment when they say its nothing, this time. No one understands in emergency room, the fear and distress of living with this at still relatively young age. Ya' wanna shake 'em and say Im really was so ill, and really truely to goodness feel this pain. Hang in there, i am too, nice to met ya

MsKim41
MsKim41 2011-11-10 11:51:29 -0600 Report

sorry about the typos.

HeartHawk
HeartHawk 2011-11-11 00:18:23 -0600 Report

Kim,

Heh, I typo all the time and do a lot of this! The important thing is to get your message out and get back replies. Lots of poeple just like you here. It is all about sharing experinece. Some are afraid that nobody is interested in what you experience but I can certainly relate to running to the ER and being told nothing is wrong! And also, don't be afraid of treating depression. Yup IT IS depressing but that can be conquered too is you treat it as aggressively as the physical stuff.

There over 100,000 people on HeartConnect alone and most are too timid to talk because they think they are alone or unique. Well, we are all more alike, share more symptoms, have similar fears, anxieties, etc that anyone knows. Get over it, get answers, and get healthy. We are all in the same boat to one extent or another. Glad to have you aboard!

HH

Mommamaria
Mommamaria 2011-11-10 17:11:19 -0600 Report

Hi there! I am an almost 9-year veteran of CHF and Cardiomyopathy. I don't have high BP, but I do have most of the other problems. I have been in and out of the hospital a few times, had a heart catheter, and failed rehab 3 times before they just let me complete it, but not graduate from it. I wish I could tell you how it is going to go for you, but the truth is, it is different for all of us. I found out at age 37 that I have Cardiomyopathy and CHF. I had 5-year-old twins at the time and it scared the wits out of me. I have a cardiologist who specializes in CHF, and my care is monitored by regular ECHO and medications, diet low in sodium and as much exercise as I can tolerate. That being said, I have been in heart failure in the past and not realized it until my ECHO showed it (and my Ejection Fraction was 10%. We all handle it differently, and that was the explanation I got for the fact that I was still able to sit up in bed and hold a conversation. I don't know about you, but I sometimes can't even hardly manage a whisper if I am lying flat and my blood pressure is too low. Carefully following the CHF and Cardiomyopathy medication regimen is very important, but you don't want invasive procedures unless your EF remains low for an extended period of time. It took me a good year to feel like I could work more than part-time again. I hope this helps you. ~~Marie

HeartHawk
HeartHawk 2011-11-11 00:20:22 -0600 Report

Momma,

You said it! Way to go! Not easy but hey, gotta do it!

hh

Kimmie2013
Kimmie2013 2011-11-11 20:19:23 -0600 Report

Thank you very much, I am going thru cognitive therapy and have a problem with depression, but try to keep on keeping on. Difficult when your life has changed so much to reach out or feel understood. Thank you for the welcome, look forward to reading others persons worries, and happy's lol

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