I am told I have dialated cardio myopathy and that I have 20% efraction rate. They say that 20% is not firing correctly. It is finding it's own way to fire. I got out of the hosp on 8/30. I am on Asprin, Coreg, and Doivan. I also take the following Vitamins: Vitamin C 1000 mg, Calcium with Vit D 600 mg, Omega 3,6,9, and Cinnamon Plus Chromium. I also take Metforman for my diabetes. They just changed my lisinpril for the doivan because of my continuous cough. They stopped my lipitor I am thinking temp because I am achey all over. I am to call the doc back on Mon to tell him how I am. I am on a no salt and no salt sub diet. I try to religiously keep my salt in foods to the 2000 mg a day. I got my first real blood work since the hosp yesterday I am happy to announce that my A1C came down from 7.6 to 6.7 just by watching what I ate. Right now I have no appetite either and I am pretty tired so I don't walk a lot. I know I need to. My cholestrol is 137, Tryigicerides 85, ldl is 75 and hdl was 45. My osteopath was happy and so was I. My doc said that the blood work did reflect me being on lipitor.
I have searched this page for dialated cardio myopathy and did not find anything. I am wondering if others have this and what they can offer me? I was told that I could be a candidate for a pacemaker and a defibrillator in six mos. I am scheduled for my next echo to measure my efraction rate in Dec.
So right now I am in a wait and see pattern. I see the cardiologist in Nov and the osteopath in Dec. I just saw the osteopath yesterday.
I need to call the cardiologist today. This is the first time my weight this morning has hit the 3lb mark they talk about. I was 201.2 yesterday and 204.4 this morning. I was told that if I go over 3 lbs in a 24 period I need to call the doc and be concerned about water weight. They just changed me to doivan. A friend told me she gained 20 lbs when she started this. Now I am wondering how they will know which one it is water or this new med. Not sure what to think. I do realize that everyone is different.
The other day I called the cardiologist because it was the first time I felt all this tightness and palpatations. Before I never felt anything at all. They say you can have a silent heart attack if you are a woman and a diabetic. I had no heart attack, had no stroke, no blockage when I went for my heart cath but have this dialated cardio myopathy. So did mom when she died at age 75 in 2008. I am diagnosed with sleep apnea. Trying to find a mask that works. My mouth is so dry and I pull it off in the night. I don't know what to think. Going with the flow and doing as I am told and waiting and seeing. Applied for disability. Now have to wait and see in five mos on that.
I would welcome any thoughts from someone that has been down this path of dialated cardio myopathy. Just not sure what to think. I might be a candiate for pacemaker and defibrillator is six mos have to wait and see. A friend showed me his it was this knobby lump in his chest by his shoulder. I really don't want that. My sister says but you may not have a choice. And my osteopath says his mom got one just recently and he can't tell. Not sure what to think. Guess we shall wait and see take the meds, do the diet, and try to exercise. Thanks for listening to me. Have a great day!
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