Wondering about dialated cardio myopathy?

By Maja1959 Latest Reply 2011-10-23 23:55:43 -0500
Started 2011-10-15 06:23:11 -0500

I am told I have dialated cardio myopathy and that I have 20% efraction rate. They say that 20% is not firing correctly. It is finding it's own way to fire. I got out of the hosp on 8/30. I am on Asprin, Coreg, and Doivan. I also take the following Vitamins: Vitamin C 1000 mg, Calcium with Vit D 600 mg, Omega 3,6,9, and Cinnamon Plus Chromium. I also take Metforman for my diabetes. They just changed my lisinpril for the doivan because of my continuous cough. They stopped my lipitor I am thinking temp because I am achey all over. I am to call the doc back on Mon to tell him how I am. I am on a no salt and no salt sub diet. I try to religiously keep my salt in foods to the 2000 mg a day. I got my first real blood work since the hosp yesterday I am happy to announce that my A1C came down from 7.6 to 6.7 just by watching what I ate. Right now I have no appetite either and I am pretty tired so I don't walk a lot. I know I need to. My cholestrol is 137, Tryigicerides 85, ldl is 75 and hdl was 45. My osteopath was happy and so was I. My doc said that the blood work did reflect me being on lipitor.

I have searched this page for dialated cardio myopathy and did not find anything. I am wondering if others have this and what they can offer me? I was told that I could be a candidate for a pacemaker and a defibrillator in six mos. I am scheduled for my next echo to measure my efraction rate in Dec.

So right now I am in a wait and see pattern. I see the cardiologist in Nov and the osteopath in Dec. I just saw the osteopath yesterday.

I need to call the cardiologist today. This is the first time my weight this morning has hit the 3lb mark they talk about. I was 201.2 yesterday and 204.4 this morning. I was told that if I go over 3 lbs in a 24 period I need to call the doc and be concerned about water weight. They just changed me to doivan. A friend told me she gained 20 lbs when she started this. Now I am wondering how they will know which one it is water or this new med. Not sure what to think. I do realize that everyone is different.

The other day I called the cardiologist because it was the first time I felt all this tightness and palpatations. Before I never felt anything at all. They say you can have a silent heart attack if you are a woman and a diabetic. I had no heart attack, had no stroke, no blockage when I went for my heart cath but have this dialated cardio myopathy. So did mom when she died at age 75 in 2008. I am diagnosed with sleep apnea. Trying to find a mask that works. My mouth is so dry and I pull it off in the night. I don't know what to think. Going with the flow and doing as I am told and waiting and seeing. Applied for disability. Now have to wait and see in five mos on that.

I would welcome any thoughts from someone that has been down this path of dialated cardio myopathy. Just not sure what to think. I might be a candiate for pacemaker and defibrillator is six mos have to wait and see. A friend showed me his it was this knobby lump in his chest by his shoulder. I really don't want that. My sister says but you may not have a choice. And my osteopath says his mom got one just recently and he can't tell. Not sure what to think. Guess we shall wait and see take the meds, do the diet, and try to exercise. Thanks for listening to me. Have a great day!

12 replies

HeartHawk 2011-10-16 19:08:37 -0500 Report


Dilated Cardiomyopathy is the most common form of heart failure. I suggest searching of rarticle and discussion under "heart failure" reather than your specific form. There are many here. Here is a good one to start with.


I would try to get your HDL up as 45 is considered low for wormen (should be at least 50 - more is better). Yes, watch the weight as water retention is harmful for you as well as sleep apnea. Finally, pacemakers today are very common and getting smaller (no big knobby lumps) They are lifesaving devices with an excellent track record.


P.S. Congrats on lowering your HbA1c - also very important!

Maja1959 2011-10-16 20:03:39 -0500 Report

I am not sure how to get HDL up do you? I will have to google it. So what do you do about sleep apnea if you can't tolerate their stupid cpap? I have a Hauns Rudolph mask. I went because my mouth was so dry. I have a humidifier on this cpap and it is up all the way. My mouth is still so dry. I hate it! I keep ripping it off involuntary in the middle of the night and often find it laying on the floor in the morning. I hate having something on my face when I am sleeping. Some of the girls say there are dentists that make dental devices for sleep apnea. I have an appt on the 26th to check out a new sleep study doc. I am fed up with the old one because when I complained of tiredness and breathlessness they slapped a cpap on me and did no ekg. Do you know what kind of success rate these dentists might have with these dental devices for sleep apnea? I need to find an altrnative. Anxious for the 26th and talking to new sleep doc. Wish I weren't so tired. Numbers are up. Praying echo in dec shows good numbers too. I have no apetite I told my friend that is probably why the A1C etc are down that and the lipitor. What do you know about the doivan? Does it make you gain wt? Can't decide if it is water wt or if it is the doivan. I built myself a spreadsheet on my ereader tonight to monitor foods. We shall see not real good with the small electronics. Thanks for the note.

Maja1959 2011-10-16 20:22:57 -0500 Report

I was just on googling how to increase your hdl. I haven't a clue to half of this. I just read that simple aerobic exercise like walking would help…now to find energy. Wish I weren't so tired all the time. I am going to try though. I do have a treadmill I bought with the money my mom left me when she passed. My osteopath said the same as you about the pacemaker. He said his mom just got one and they have come a long way. It is just a lot to wrap my mind around is all. Wish I could work and just be me. One day at a time.

Maja1959 2011-10-18 03:57:37 -0500 Report

I take the vitamin D with Calcium. I am working on the exercise and weight loss. I do not smoke. I was hit from behind at a red light by a drunk driver. I don't like to drink. What are fibrate drugs? I can talk to the doc about Niacin.

Maja1959 2011-10-19 04:32:54 -0500 Report

Thanks! I will read this soon. Today is a busy day. I have to figure out how to deal with the stress in my life. Thank you for your guidance.

HeartHawk 2011-10-19 21:44:27 -0500 Report


You have the right formula! Formulate questions then get the answers. That is what HeartConnect is about. The best part is many others learn and benefit from what we ask and answer!


Maja1959 2011-10-21 21:31:35 -0500 Report

Regarding water weight. I know I am restricted no salt and no salt substitute. I am to limit salt in everything. I know I am aloud 2000mg a day. So why when I keep my sodium intake under that is my weight up in the morning? I am so tired about not being able to eat anything good.

HeartHawk 2011-10-23 00:16:48 -0500 Report


Interesting, most people way less in the morning for many reasons. Restricting salt will not necessarily lower your weight in the morning so I would talk to my doc to see what this is about.

Note that not everyone is "salt sensitive" so severe restriction of salt may not be the answer for you. However, weight loss by virtually any means (especially with exercise) is the most powerful "medicine."

The less salt you eat the more you will become accustomed to not having it. It was the same with sugar for me. You will find that in time you will not need salt.

Here is an interesting article and commentary on the "salt debate."


Maja1959 2011-10-23 06:25:52 -0500 Report

Dear HH,
You said that here is an interesting article and commetary on the "salt debate" but there was nothing attached?


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