I've been putting off this post for quite a while…I'm not exactly sure why. I guess that I feel a bit selfish. I don't want anyone to think that I feel "entitled" to special treatment because of my disorder, but on the other hand, I'm extremely interested in everyone's experiences. I've (luckily and gratefully) worked for my fiance's family's company since leaving my last job after being diagnosed with 2nd degree heart block. They lovingly hired me knowing that my disorder lead to frequent panic attacks and doctor appointments. Everything has progressed perfectly, and I was promoted to a very good position over the years. Not too long ago, my disorder was upgraded to complete block. Since then, the doctor appointments have increased tremendously and my frequent missed or half days have seemed to push some buttons. Now, I should take the time to explain my personal belief. Please take into consideration that this belief is purely from my own experiences and shouldn't be compared to your own. I believe that it's very difficult for normal, healthy people to TRULY understand a person with a medical disorder…no matter how many times you describe your feelings, symptoms or general thoughts. After the original diagnosis, everyone was understandably sympathetic but after a while they seemed to…sort of accept it. It seems that unless you have a cosmetic or physical abnormality, it's hard for them to remember what you go through in your head on a daily (or in my case, constant) basis. So back to my question, what are your experiences with your heart disorders/diseases and your career? I personally experience extreme fatigue and dizziness all day, everyday. From time to time, the fatigue seems to build up so much that I can't even get out of bed. Then I'm stuck missing a day of work. Even my fiance (who I've been with for just about 10 years) forgets and accuses me of being lazy when I miss work. I just can't seem to correctly explain that feeling to anyone…but that just goes back to my previous belief statement. Please share your experiences! I'd love to know that I'm not the only one that feels this way!!!
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