Teresa Rose
By Teresa Rose Latest Reply 2011-12-15 10:11:24 -0600
Started 2011-08-11 02:49:47 -0500

I Am Scared That My Daughter is Dying. She had a baby it will be 3 yrs. on Oct.15 . During the birthing process she experienced an aortic disection which caused a cardio myapathy. She wasn't acting like herself, I thought it was just post partum depression. She went home from the hospital but she wasn't feeling well. When she went back to the hospital a couple of days later for the babies test her husband made her go to the ER. The ER doctor discovered the cardio myapathy but didn't find the Aortic Disection. They kept her in the hospital for a couple of days and got her on some medicines. She went home. The next morning she had a heart attack. The ambulance was just down the street from her home and they were there in a couple of minutes. She lost her functions in her house and they got her in the ambulance. They shocked her back . Upon arrival at the hospital they placed 3 stents in her heart and then her doctor found the Aortic disection. She was rushed to the Indiana Heart Hospital in Indianapolis and they did an emergency triple bypass surgery. Her doctor said that her arteries were tiny like a childs. Last year they gave her a pacemaker because her heart was beating irregular. A couple of weeks ago she went to her doctor & he sent her to a doctor that's going to be taking care of her from now on. He told her that they send patients to him when they already have one foot in the grave. He told her that her heart was at 30% and would never heal. She isn't a canidate for a heart transplant either because she wouldn't survive the surgery. It's a miracle she is here now. Her new doctor started her on new medicine that made her feel really sick. She has lost alot of weight & she is really pale. I am so scared for her. She has two small children, a boy 2-3/4yrs & a 9yr. old daughter. She also has a wonderful husband. I don't know what to do to help her. I'm not in good health either & I have alot of heart pain. I have so much stress built up inside.

13 replies

lifedriver 2011-12-15 10:11:24 -0600 Report

Hey Teresa, Life here I am so sorry to hear of this. We are friends from another site and as always I am here for you in this trying time. My prayers goes out to you and your family. Charles

MWmelbourne 2011-08-25 12:30:35 -0500 Report

I am glad that you have a wonderful family and grandchildren to share your life.
Sometimes we allow coments from doctors to carry too much weight "saying they only send him patients with one foot in the grave" is not a good thing. Stress and poor atitude are big downers pyschologically and physically! Find a doctor with a positive attitude especially if the new medicine is making her sicker. I should have left this world a few times now, but.. I'm still here! I never give up and try to keep a positive attitude no matter the circumstances.

You also need to take care of yourself - remember to take care of the care giver.. If you health takes a turn for the worse due to stress then that will help no one. Take a breath, relax and try to let some of that stress go for everyones sake, I wish you all a good day.

cherokeeBlonde 2011-08-13 12:07:08 -0500 Report

Hello Teresa, I was off of here for a few days, and i just got on back right now and read about your daughter I am so sorry for what she is going through and for you I know how hard it is when your child is in danger. I had a daughter her name was Jessie, which just having her was my miracle, she was born june 29th 1992, and she died November 21st, 1992 she was barely 5 and half months but she was perfect. when I was pregnant, I was told I had to have an abortion, or i would die, no matter what I could not carry a child to term. it was very hard in some ways, I had to give my self shots of heperan in the stomach 2 times a day since I had the mechanical valve, and could not take coumadin while I was pregnant, i actually had social services which stuck their nose in my business, and took me to court and had a judge order me to have an abortion or I would die. Well there was not no way that was going to happen, so I carried her to 7 months, than went in labor, and had a c section and she was here and with no health problems what so ever, and than in November one night she went to sleep and did not wake up, she passed a way from S.I.D.S. which devestated my to the point that I quit taking meds, and ended up having a stroke 2 and a half years later, which left me paralyzed could not eat, talk, move my legs or arms, it was a night mare, and with in 1 week I was up walking talking and out of the hospital and with a new attitude about life, and hate to say this but what pulled me through it all was friends and love ones, I never went to therapy, or rehab, just the care and love of friends did it for me, not the medical profession, I have dealt with them telling me why are you alive and you have maybe 3 months to live and I have doctors argue with me that there is no way I could be alive with the heart problems I have and that they had never been corrected, They have been begging me to have a transplant for at least the last 20 years, which would mean a heart and lung transplant, which they say I would only have about a 20 % chance to survive the surgery itself, and so I just laugh, and say you know for some unknown reason God chose to make me very different, and well backwards (My Valves) so why would I ever want to take the chance of a transplant when at age of 2 they said there is no possible medical possibility of me bieng alive till the age of 5, than it was 12, than it was 16 and so on and so on well here I am going on 47 in october, and hey guess what I am still here. i would never in thousand years give advice to another I am not a medical proffesional, however I am a dam good survivor, and my first cardioligist who passed away in 1998 had always said the onlly reason i am alive is due to the fact that I want to me. my entire point is this, dont ever give up, and dont ever let your daughter see that you have . let her see you strong, and just let her know that she is in God's hands and we all have a reason for bieng here, and he is the only one who knows when he is bringing them home. God tests each and every one of us to go through what ever our lifes throw at us, and its alll about how we chose to handle it. Giving up Giving in however you put it that is what takes us away, our minds have so much to do with our health, and has so much control of what happens to our bodies, you have to always think that yes im going to prove to everyone that they are wrong, its not her time we do not know our time only God does and I dont care what any medical professional says they are human also and they have only been trained in the physical of the body and not the whole person, when my mother had a stroke in 2001, and went into a coma, I went to the hospital in oregon, and i was told that she was completly brain dead and had no activity in the brain at all, I just looked at these 3 different specialist and said im sorry you are wrong, and yes they showed me the machines that said she was brain dead but still I said sorry no she is not, and i sat and read to her and talked to her for 7 days, in which she did open her eye's one time, and i had got so excited, and there was a nurse in her room at the time, and she says oh please dont think that means anything it was just a reflex, well needles to say my sister in law at the time had to jump up and stop me from physically harming the nurse, anyhow leave it to my luck my pacemaker at that time suddenly decides that it wants to malfunction so i was forced to leave her side to get back to california to get a new one put in, I only trusted ond doctor in my life. anyhow after 19 days of the coma my mom was in they moved her to a care facility in oregon on the cost where she lived and well this brain dead women, WOKE up and guess what she had her little mind on straight to the only problem she had is that her right leg was paralyzed, so she could not walk, and her time frames in life were kinda mixed up she thought she was married to all 3 husbands, still and she was loving it. So please dont ever let them see you weak or any doubt, the mind can do miracles with a body and I am proof of that. I have lost my grandma, mom, and dad, and daughter, My mom passed (4 yrs later) she gave up and just wanted to go home to God. So just because some idiot who went to school for 8 years or such, says that you are going to die dont make it true. I have always asked questions about the medications they give me, and have done research on them I suggest you also do for your daughter, see yes we need our heart to work but we need the whole package to work together and so many different meds make the parts not work right which causes more work for the heart. heck I have had no heart beat at all of my own since I was 12 years old, which a pacemaker has shocked my heart 24/7, since 12, and thats working a muscle which your heart is a muscle. I am sorry Theresa that it seems I go on and on, but I am desperate for you and your daughter to understand just because they it so does not make it so. feel the power or what you can control for yourself and let god give you the rest, dont fear the future and live today liek their is not a tomorrow, but dont live in fear and let it bring you down and make you weak, just live knowing that you are doing it all today no matter what, no one knows about tomorrow, not even the medical doctors. there is book called the " The Heart" by Matthias Rath, M.D. cellular health series. you should check it out, see our bodies need more than just the physical we need the nutriets that create and care for each cell also. please check out this book its short and its to the point and its so true I have personally tested the things I have read, i am not saying or ever suggesting that your daughter does the things I do, when it comes to medical care, or a doctors care or meds, im just saying question it all they are not God and they do not control our destiny, they can only medicate and make it seem like it working just to cause other organs damage and which does effect our hearts so question it alll and dont be afraid to disagree with a doctor, they human like us they just know what they have learned, that does not make it right \
sorry to go Michele have a great day and you and your daughter are in my every prayer and I have for what you can help your daughter do to have a better out look so she is not dragged down by medical only choices, love is strong and it does heal and there are miracles
I am one

tankmom 2011-08-12 21:17:43 -0500 Report

Hello Teresa, I have been a member of this forum for a while and you have so much love and support coming from all the members. Let God carry you throught this and have the faith, like everyone has written before me. She will be added to out church prayer list and I will keep you and your family in my prayers. God bless and keep the faith.

HeartHawk 2011-08-11 23:43:29 -0500 Report


I am not a doc but I work with a cardiologist. It sounds like your daughter experienced a heart nightmare but the docs have pulled her through the emergencies. Now rehabilitation starts. It is not perfect and there are no guarantees but I have heard of many miracles (praying sure doesn't hurt).

I am a God fearing man but but I also believe that God helps those who help themselves. The first step is assessing what the problem is.

  1. The doctor's diagnosis of cardiomyopathy is somewhat vague. If your daughter has some form of congestive heart failure (CHF) due to cardiomyopathy it is not unusual for her ejection fraction (EF) to be at 30%. That is half of what it should be (50-70%). This is a serious problem but the prognosis is dependent upon the type of CHF. Get all the diagnostic data you can from your doc. You cannot attack the problem until you know what it is. Here is a good article about CHF.


  1. Really push the docs! I mean really go after them. Right letters, call, e-mail every doc in the world if necessary. Educate yourself. Use websites like this one and others to learn everything you can. It takes time and effort but you can do it sitting down in front of a computer without a lot of physical effort. Find out whatever treatments are available and use them all (with the consultation of your doc). I just read an article today where they found what might be a miracle cure for cancer (no joke, this is real)! You never know what might be around the corner!

  2. Physical ailments are aweful! The worse they are the more awful they are! This can cause depression. If you give up you have already lost. Never give up and get psychological help if needed. Don't be ashamed! The brain is just another organ like your heart and they must both be healthy if you are going to win the fight! You will find a great deal of emotional support right here.

  3. Report back here as you find things out. You will find a community of thousands willing to help. It is more than likely someone here has experienced what you are just now facing and may have an answer and support. Don't be afraid to ask questions. That is what this site is about.

Welcome aboard and please stay in touch. Many of us fully understand what you and your daughter are going through and would love to do what we can to help!


Teresa Rose
Teresa Rose 2011-08-12 19:40:58 -0500 Report

Thank you so much for the encouragement. The new doctor that she started going to started her on a new medicine. He said it would make her feel really bad before it made her feel better and then when she feels better The dosage will be increased. They were supposed to up the dosage last week but she wasn't ready for the increase. I am definetely looking for a miracle here. It's really tough because when she was growing up she was always healthy. When she grew up she was healthy, hardly ever sick, she didn't smoke or drink and always exercised. She wasn't overweight either. She always took care of herself. That's probably what helped save her. I have told her about this site because I know that everyone on here can help her alot with so many things. Her doctor told her she can't work anymore so she is going to need all the support she can get.

HeartHawk 2011-08-12 22:21:43 -0500 Report


Please do bring her onboard. She can both learn and help teach others about her condition. And sometimes just knowing you are not alone is powerful tonic for self-esteem and attitude.

Also, what was the medication prescribed for your daughter and what specific diagnosis is it intended to treat?


Avajlaas 2011-08-11 17:31:16 -0500 Report

Hello Teresa, I am truly sorry about your daughters condition. I have been in the situation one night when my oldest son had gone out with his friends to a concert. He only had two alcohol drinks and started acting like he had drank twenty. His friends drove him back home and dropped him off and left. At that point he started to stop breathing, over and over again I did CPR on him and had my other kids call an ambulance. He had died about seven times at home and nine times in the ambulance, then a few more times at the hospital. The whole time I prayed for him and comforted him the best I knew how. He pulled through thank the Lord, but had too low of a count of …I think it was potassium which caused the effect. So I have had a very close call and can somewhat relate to your fears. As others have said, be there now and take every moment as a blessing to be thankful for. Cherish her past and her present,and her children as a large part of her. My prayers are also with you and your daughter. God bless you both, Ava

SlatonLeo 2011-08-11 09:03:46 -0500 Report

I am so sorry about your dausgter Teresa Rose. I can not say I understand exactly, but I do there is a God, the One True God who will stay by you all the way thrugh this tying time.
I know it is not helping right now, but we will be praying for your daughter, her family and you too.
My wifes nephew has a daughter who was born with a whole in her heart, she has had numerous surgeries in her life. She is now 21 years old and the doctors said she would not live past 4 or 5 years old, this was a very trying time for us and especially her mom and dad. Our church began praying for her and them and God was good and has allowed her these extra years. Our niece has twin boys and one of them had a whole in his heart too and now it is smaller everytime the doctor sees him, he is 14 months old and doingvery well. Prayer is why he is better too.
I don't say that God will allways grant the request of long life and health, but He is always there for us if we will trust.
Please know that I am truly sorry about the trouble you are having, but God can see you through it. Trust Him.
Praying for you and your daughter.

berrykins0 2011-08-11 09:01:41 -0500 Report

i 'm sorry to hear your daughter is not doing well. best thing you can is be with her all that you can.these times are tough.my dad had oral cancer they did all they could to try to stop it from spreading but in the end he ended up dying. but i knew i needed to be there with him all that i could. and my mom was with him when i couldn't be.my worked nights i worked days. so he was never alone. that was the best we could do. think best youcan do matters to the perion that is dieing.not what you can't do matters to them. but in the end my mom and me were both here when he died. i feel we were both vey lucky to both be here when he died. ok this may seem crazy but . prayed to god to make sure we both could be here. it's like he answered my wishes. never hurts to talk to god.like when grandmother died which was my mother's mom she was with her at the nursing home when she died ihad got hom about a halh an hour befor she died again i asked we be both home at least and it's he my wishes again.i hope things come out for you the same way they did for me you will be able to be there when she passes on. it will make things feel complete between the two of you best wishes to you. take care.

Teresa Rose
Teresa Rose 2011-08-11 14:11:49 -0500 Report

My husbands father passed away a few months ago & he was with him when he died. He had been telling his father about Jesus and how he died for him. Before his Dad passed away he accepted Jesus Christ into his heart and he died peacefully. My husbands Mother and sister were also there and he was able to minister to them. He said there was such a sweet spirit in the room. I believe in God and that everything happens for a reason and it's up to him when our time to die is. I am praying that my daughter lives to at least see her children grown. That's the part of this that really breaks my heart. I know where she is going when she passes away. I can only trust God at this point. Thank you for your kind words. Many Blessings to You!!! - Teresa Rose

Next Discussion: So Many Changes »