HI! I'm new!

Maggie O
By Maggie O Latest Reply 2011-05-20 22:07:26 -0500
Started 2011-05-17 00:53:29 -0500

I was diagnosed with Mitral Valve regurgitation w/o prolapse over a year ago. I was placed on 50mg of Atenolol per day. Since that time I have continued to have chest pain that radiates to my jaw (almost evertime) as well as my back and shoulder (some of the time) . I had about two and half months last year where I did not have pain. I have been to my regular gp every few months and explained the on going pain. I was told that was just part of my condition and something I'd have to live with. I'm no expert but something seems off. I made an appointment with a cartiologist for this friday. I'm really afraid they are going to find something worse, but at the same time I'm afraid they are going to tell me the original diagnosis was right, and I'm just shit out of luck. Has anyone experienced anything similiar to this?


5 replies

Maggie O
Maggie O 2011-05-20 05:06:26 -0500 Report

Thank you so much for the info! I'm very nervous about going to a new doc today but hearing your stories has helped! I will keep ya'll posted.

HeartHawk
HeartHawk 2011-05-20 22:07:26 -0500 Report

Maggie,

We'll be waiting for your report! It's allin the details. What may seem silly or embarrassing to you might be the tidbit of info or validation that helps another.

The corollary to, "There are no stupid questions" is "There is no silly experience!"

HH

HeartHawk
HeartHawk 2011-05-18 22:05:19 -0500 Report

Maggie,

Welcome aboard! I have actually had my regurgitation improve over time but mine was due to mitral valve prolapse (MVP). Had all the calssic symptoms asoociated with MVP like palpitations and anxiety but no real pain. I take 25mg of Atenolol on bad days and it works fairly well.

I would have a full workup to fully explain any pain especially pain that radiates into the jaw. Ask about a stress-echo and heart scan (calcium score) as two good non-invasive tests. Perhaps inquire about nitro for pain relief. If notro solves pain this is suspicious for ischemia which MUST be defined and resolved.

Here is a decent "high-brow" article on MVP and mitral regurgitation.

http://www.heartconnect.com/news-articles/202-degenerative-mitral-valve-disease-with-emphasis-on-mitral-valve-prolapse

Knowledge is power!

HH

Mazzola 1
Mazzola 1 2011-05-18 05:35:18 -0500 Report

I too was diagnosed in October 2010 My cardiologist asked if I was ready for replacement surgery of my mitral valve and I said "NO!" I have had two opwn heart surgeries in the past 20 years. I said if it can be done minimally invasisve I would go tomorrow. My symptoms aren't pain-they are tired easily when working in the yard or lifting things. He had given me nitro lingual spray if I experience chest pain-it works wonders. Longer shelf life than nitrogly tablets. The wose part of the whole thing is anxiety about it.

HeartHawk
HeartHawk 2011-05-18 22:16:30 -0500 Report

Mazzola,

I hear ya on the anxiety. Mitral valve disease is tought to be associated with anxiety believe it or not. There are some very minimally invasive surgical techniques available now to address this. Here is a video and an article by the Cleveland Clinic with additional videos.

http://www.heartconnect.com/videos/46-minimally-invasive-mitral-valve-surgery---right-thoracotomy-approach

http://www.heartconnect.com/news-articles/203-minimally-invasive-mitral-valve-repair

HH

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