Congestive heart failure

By flowmaster333 Latest Reply 2013-03-14 16:58:20 -0500
Started 2011-04-28 00:09:33 -0500

I was diagnosed as having congestive heart failure in April of 08. I was 29 at the time. I havent heard of any other cases in my age group (other than in newborns). Has anyone else heard or know of anyone relatively close to my age that has been diagnosed with CHF?

28 replies

Anonymous 2012-01-24 15:47:08 -0600 Report

My son, who is 25, was diagnosed with CHF 6 months ago. I had NEVER heard of anyone that young with CHF. LSS< he had incredibly high BP, which is now under control, and he is doing very well.

Pekka2 2012-01-24 10:23:37 -0600 Report

I was 41 when I was diagnosed with Congestive Heart Failure. Mine came from uncontrolled high blood pressure. I was under a lot of stress from several sources. Also, I never thought about the salt I consumed in my food. I had made several trips to a lung specialist for my main symptom - I had to really struggle to breathe. He found zero. My first visit to a cardiologist I was put in the hospital where they started to drain fluid off me. I had 11 lbs of fluid around my heart. Iwas told that if I had not come to the cardiologist that day, I would have died before the next day began.

HeartHawk 2012-01-24 21:21:48 -0600 Report


That is great news. It is sooo important to find a good doc as you found out. I hope, like "anonymous''" son, you BP is now under control. What did your cardiologist prescribe?


scott11 2011-06-14 20:31:14 -0500 Report

i was 38 when i had a heart attack . one of my arteries was 100% blocked due to hight cholesterol. it was over 300 for 5 or more years. whatever you do watch your cholesterol dont let it go like i did. now i think i have p.t.s.d because of my heart attack. it has been very difficult.

HeartHawk 2011-06-14 23:52:38 -0500 Report


Good advice, 300 is way too high. Fortunately, high cholesterol is easy to treat these days but, your right, you gotta stay on top of it. How much have you been able to lower it and what have your doctors prescribed?


scott11 2011-06-15 00:48:50 -0500 Report

the last time i had it checked it was 127 and i take lipitor now. just wish i would have started the meds 5 years ago when my doctor warned me. i was lucky and got a second chance

HeartHawk 2011-06-15 22:39:24 -0500 Report


Optimal LDL is below 100 with some programs (like Track Your Plaque which I am on) suggesting 60. Of course, it is much more complicated that just LDL Cholesterol. Talk to your doc about the newer statins like rosuvastatin (Crestor) and pitivastatin (Livalo). They lower LDL more with a lower dose and also increase HDL. Remember, your LDL/HDL ratio is another important factor.

Look at it this way, the more you do and the earlier you do it makes a difference. Your second chance is a gift!


flowmaster333 2011-05-13 00:19:39 -0500 Report

I keep hearing about the development of stem(sp?) cel research and the technology to grow beating heart tissue in a laboratory … Any one else hear something similar or is the cool facts app on my iPhone full of $#!+?

HeartHawk 2011-05-09 23:37:44 -0500 Report

Yes, much of CHF is due to the fact that the heart is really just another muscle. If you exercise it it will grow. Trouble is, when the heart muscle wall grows or "thickens" it can become stiff and electrically unstable.

The "exercise" is just eh heart responding to some "heavy lifting" as may be caused by high blood pressure or other cardiac challenges.

CHF is a tough nut ot crunch but treatment is improving. Just with my health challenges I always look for cutting edge treatment to live to fight just one more day! So far so good! Looks like we are all at least still here to talk about it!


flowmaster333 2011-05-06 00:30:15 -0500 Report

So you've all pretty much all been dealing with this disease for quite some time … Thats a relief … Most of the statistics that I've read show most of the people diagnosed with chf succumb within a year and the rest within five … It's been two years for me ( I mistakenly put that I was diagnosed in 2008 but it was in 2009) I need to get back into the heart failure program and investigate further on the root cause of it … The last time I had bloodwork done it showed my bnp down from 1600 all the way down to 19 so it appeared as if my treatment was working or at least moving in the right direction

Heart-Healthy-Bob 2012-03-10 23:03:24 -0600 Report

I'm at 6 1/2 years and counting. Lifestyle matters Three stents and an ICD were the immediate fixes, and medications have helped, but I think lifestyle is what has really kept me alive. The ICD, by the way paced my heartbeat up a little bit in the first couple of months, but then they reduced the floor, and it has done essentially nothing since. But it's there, just in case.

My CHF resulted from a heart attack in which the Left Anterior Descending (LAD) artery was 100% blocked. The attack killed a portion of my left ventricle, which is the core reason for the heart failure.

HeartHawk 2011-05-03 00:06:19 -0500 Report


Did your docs come up with a root cause for yor CHF like rheumatic heart disease or did they consider it "idiopathic?"


flowmaster333 2011-05-03 22:11:25 -0500 Report

My grandfather and his brother both died in their fifties from heartattacks … My cardiologist retired before getting down to the root cause… I just assumed it was because I have a bicuspid instead of a tricuspid

HeartHawk 2011-05-11 22:31:53 -0500 Report

To All,

Root cause is the big question that needs to be answered in this thread. There is a root cause for all conditions. The first order of business must be to determine the root cause for each person's CHF in order to effectively treat it.

For example, I was recently diagnosed with mercury poisoning and started chelation treatment (I am on the second of 5 rounds). But, we still haven't figured out where it is coming from. Until we do, no amount of treatment is going to "cure" me.

Push your docs for an answer. That answer might be, "I don't know (idiopathic)" which simply means you have to keep searching or at least adopt a theory and treat to the theoretical cause.


arkansasurviver 2011-05-05 12:13:11 -0500 Report

Hi just wanted chime in. I was diagnosed about age 19 and I just turned 28. I do know that my chf is supposedly from the chemo I received as a child. It's so nice to find someone in my age bracket.

mbtex 2011-05-01 21:43:19 -0500 Report

I understand what your going through. I was 22 when I was diagnosed with congestive heart failure or another name for my condition is dilated cardiomyopathy. Because of this I was forced to give up football as I was a college football player at the time. At the time it was a shock and I had an immense difficulty getting over it for years and really did not come to grips with it until now. Now I am starting to lose weight after I put on a few lbs. I also have a congenital heart defect which is separate from the CHF but at the same time can contribute if I am not careful. And although it is a scary condition it is possible to live with it. I hope this helps.

HeartHawk 2011-06-14 23:46:56 -0500 Report


Good job with the weight. Remember, the heart is a muscle, force it to "work out" inappropriately and it will grow and thicken causing CHF symptoms!


KimberAnne1222 2011-04-28 16:05:03 -0500 Report

Well I was 39 when diagnosed, although 10 years difference people tell me I am pretty young for that too.

big momma 10
big momma 10 2011-06-14 08:37:21 -0500 Report

I was 48. With no health problems to speak of. All of my Drs didnt understand why my heart was not functioned right. I received my first packer in 2004. I am on alots of medicine, most is water pill. I just got taken off of lisipril(wrong spelling) due to chronic coughing. I never had high BP, Mind is always too low, so I have wacth out for that.

HeartHawk 2011-06-14 23:49:07 -0500 Report


Have the docs come up with a cause? Have they replaced the lisinopril with a different blood pressure med?


big momma 10
big momma 10 2011-06-18 11:54:52 -0500 Report

No. I just seen my Doctor, about 2week ago. He isnt going to replace it. I am on a lot of water pill already and I have very low blood pressure, so have to be careful about certain medications. I am still not sure what is wrong with my heart and why I have a pacemaker, but I do. I still get very very tired, my heart flutter a lots it feel like it is in my throat at time. I retain a lot of fluid. Sometime(most) of the time I just dont feel to good. I wake up a lot in the middle of the night feeling real depress and down and thinking crazy thought. like I am dying. Feel alone most of the time and just not having the fun life I use too. oh well I keep on keeping on(lol)

HeartHawk 2011-06-19 00:10:58 -0500 Report


Press your doc for answers. That fluttering you feel could be atrial fibrillation or a number of other things ot just anxiety. Have you had a Holter Monitor test (it's like a 24 hour stress test where they hook you up and record your heartbeat for 24 hours). Ask specifically what the pacemaker is for. Knowledge iso power!

I know the depression thing and even get anxiety attacks but they happen less frequently if you seek medical help for depression/anxiety. Plus, talking here helps too. Of course, it also helps to laugh when you can!


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