rhabdomyolysis

cynthiakelly
By cynthiakelly Latest Reply 2011-04-19 10:49:53 -0500
Started 2011-04-05 09:38:23 -0500

what type of test is needed to test for rhabdomyolysis? can this cause leg pain constintly and when walking. I take lipitor and wondering if this maybe the reason i am having pains in the legs. docs already done a bunck of test and found no reason. please help


7 replies

Perplexed
Perplexed 2011-04-09 21:11:48 -0500 Report

Whew! My introduction to Rhabdo was my former daughter-in-law's heat stroke whilst in the Army. We never knew her field temp but her temp was 105 when they got her to the hospital. She spent several days in a coma, w/us not knowing if she was going to live or not. She didn't recognize my son, nor her daughter and thought their son was her brother when she eventually came out of the coma. My son spent months carrying her up and down their apartment stairs as she slowly recouperated. And then he had to fight tooth and nail to get her disability. The Army was trying to avoid as much liability as they could get away with. Fortunately, there were a couple of civilian EMTs on the march and THEY were the ones who finally had to FORCE the military to transport her to the hospital. The military said she HAD to give up until then they woulldn't pull her and transport her. My son was finally able to find the civilian EMTs and they were more than willing to testify. THAT is when the Army opted to give her disability.

I later learned that rhabdo is called "tying up" in horses and we have been present a few times at summer horse events where horses have "tied up" so I understood the problem - just didn't recognize the name.

HeartHawk
HeartHawk 2011-04-11 00:30:28 -0500 Report

Perplexed,

Yes, rhabdo is VERY nasty! How did things turn out for your daughter? What were the biggest problems during recovery. Was it a full recovery? How long did it take?

Sorry for all the questions but rhabdo is a big concern particularly among all the members here taking statins. Your experience could be very helpful.

HH

Perplexed
Perplexed 2011-04-11 01:14:55 -0500 Report

Unfortunately, the marriage didn't last. She never recovered all of her memory and it took several years before most all the brain damage was compensated for. The last damage she was still trying to recover from was her "sequencing", keeping left from right straight such as when driving (safest to point the direction you wanted her to turn rather than tell her left or right), adding numbers past a certain number I forget which, making change at the grocery store, etc. The toxins contributed to her brain damage according to the Fitzsimmons doctors. Last I knew still no signs of lasting kidney damage. The muscle damage to her legs probably took 18 months to 2 years to overcome. I think, but don't know for sure, that recovery of the leg muscles was eventually complete.

HeartHawk
HeartHawk 2011-04-11 23:37:11 -0500 Report

Perplexed,

Thanks for sharing. Your experience demonstrates why it is important ot catch rhabdo as early as possible. Good luck to your daughter. I hope each passing years rebuilds what was lost.

HH

HeartHawk
HeartHawk 2011-04-07 23:15:53 -0500 Report

cynthia,

Looks like my earlier post disappeared! What it said was this.

Rhabdomyolysis is the rapid distruction of muscle tissue. The deluge of protein entering the bloodstream can cause kidney failure so it is a serious matter and should be treated as such. Contact your doc!

That being said, if you had full-blown rhabdo you would likely know it. More likely, you have moderate to severe statin-induced myalgia. 100-200mg of CoQ10 works for many people (statins reduce CoQ10 levels). Also, there are many statins and each one affects people differently. Talk to your doc about switching to one of the newer statins like Crestor (rosuvastatin) or Livalo (pitivastatin) as they require much lower doses.

HH