What do you think of the site?

John Crowley
By John Crowley Latest Reply 2011-06-08 19:01:40 -0500
Started 2010-08-31 16:05:17 -0500

We're very excited to provide this site for patients to come together to learn from and support each other.

We're always looking for ideas to improve the site. Please give us your feedback. What do you like? What do you enjoy most? What don't you like?

We look forward to working together to make this a great community.

8 replies

KimberAnne1222 2011-04-28 16:13:14 -0500 Report

My favorite part of this site is knowing I am not alone. Its frustrating having to deal with sickness and then dealing with family that doesn't understand whats going on with me. U can have all the info about a condition, but u can never empathize unless ur dealing with it too. (not to berate or discount how family must feel), but its just nice to know there r people that understand because they're dealing with the same or similar conditions.

Also its nice that this is not a pity party site, but a very supportive community.

Thank u all for starting this site :)

frantique 2011-03-19 09:23:01 -0500 Report

I am new. I was diagnosed in Jan with cardimyopthy. I am taking an ACE inhibitor, beta blocker, and Lasix in small doses. I am just learning about it and look forward to learning here and interacting with others who face the same problems. I have Type 2 diabetes. I am struggling to figure out a good diet that is salt restricted, low fat, fluid restricted, diabetic and conducive to weight loss. I need to lose about 20 lbs.

Mazzola 1
Mazzola 1 2010-10-14 12:02:02 -0500 Report

I have had cardiac ablation done 3 years ago and my rhythm problems have been resolved. Procedure was simple-done outpatient at Our Lady of Lourdes Hospital in Camden NJ.

triggerfish61 2010-10-13 18:17:54 -0500 Report

I am also new to this site . I like what I see so far but am a little curious why there is nothing about congenital heart defects in adults, which is what my condition falls under.

mgoff 2010-10-11 20:44:08 -0500 Report

I am also new here. I am looking for some support with anyone that is
familiar with heart rhythm issues.I look forward to getting to know some folks!

tiffsmom08 2010-10-10 03:23:46 -0500 Report

I'm new to the site but haven't had much time to look around yet. From what I have seen so far, I'm impressed. I don't have a heart problem myself, but I'm surrounded by family members who do with various heart issues. I look forward to getting information and better understanding what these conditions are and how to deal with them. Thanks for having this site and helping people to understand and manage their conditions.

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